Thursday, 2 May 2013

Community projects: Natural Choices for Health and Wellbeing



I’ve been involved with Natural Choices for Health and Wellbeing from the beginning of the programme a couple of years ago (on and off), but have now moved out of the region. So it was great to catch up with friends at a meeting summing up the findings of the programme evaluation.

Following a great lunch at Blackburne house, Andy Hull kicked off the meeting , by encouraging us to think of evaluation as a celebration rather than dry figures and graphs! Clare Olver and Sarah Dewar, who have been running the programme, gave an overview of just how many community groups had been involved and what they’d all been up to. Here’s the numbers: 3274 participants, 100 partners, 84 events, 1159 workshops, 867 volunteers, 135 employed, all from a total £300k funding! Wow how did everyone find the time and energy! And this was the key point that Sarah and Clare emphasised – none of this great work would have happened without all the community organisations and volunteers commitment – so Well Done!

And this is the important bit – to keep on meeting together to support each other in continuing the great projects and partnerships.

As well as numbers the programme has collected a huge amount of stories and pictures – from the shortest of comments:  one of the participants felt amazing swinging off a branch of a tree! (forest school project). Looking at the ‘bigger picture’, the collection of stories and feedback really reinforces our understanding of the ‘Five Ways to Wellbeing’, for examples, for Take Notice ‘the location provides a safe haven’, for Give: ‘Community members now volunteering to help sustain the environment’, for ‘Be Active’ – well there were just too many comments to count!

The invited speaker was Dr William Bird MBE who gave a great presentation on how physical activity can extend our lifespan! In his view, obesity is not the priority, it’s being sedentary and being stressed that we have to avoid. Even just walking at a moderate pace, several times a week can improve our health and help prevent disease. If we do this in a park or greenspace, then this is also likely to reduce our stress  - which again helps prevent physical and mental health problems. Indeed William made the point that stress and lack of physical activity can feed each other in a vicious circle, but community activities such as Natural Choices for Health and Wellbeing, can help break this circle. He thinks of chronic stress within 3 categories; People, Place and Purpose. These concepts are really just like the ‘Five Ways to Wellbeing’. 

Finally William emphasised how community organisations could use evidence about what can improve health and wellbeing to give weight to funding applications for future community projects. This is where the evaluation from Natural Choices will help – showing that these projects had benefits for the people of Liverpool is a great way of suggesting that more investment should go to these type of projects to enable even more people to get involved.

Tuesday, 18 September 2012

Building Integrated Care conference at Kings Fund: Views from Singapore, US and Europe


Key impressions
A starting point was work in Singapore with development of transition teams to ensure continuity of care across the patient journey. Seamless care without delays between services is perhaps a fundamental of all integrated care programmes.
Tweet@nchadborn:
Jason Cheah>need to go beyond Wagner model of chronic medical care to include social care #integratedcare
Tweet@Innovation_Unit:
Jason Cheah: have to be aware of pilot-itis and change fatigue. some patients get stuck between pilots & rapidly lose faith #integratedcare
Leadership is a key issue, with one speaker pointing out that integrated care is now a management and leadership challenge, rather than a technical one. It was also noted that the frequent recommendations for ‘leadership’ rarely go into more depth than that, and actually what is required is detailed practical information about what is involved and how to go about it effectively.
Contrasting views
Many programmes involve population-level disease registers or registers of people who are ‘at-risk’ of being admitted to hospital. Programmes use registers to target people with specific diseases, requiring palliative care, suffer from complications of diabetes, or are at risk of having a fall. This contrasts with a more rural programme with small GP practices, who feel that their personal knowledge of their population is superior to a register.

A common view was that programmes should be big enough to yield significant efficiencies. This was described as needing to be big enough to release whole-bays of beds in hospital, otherwise there wouldn’t be sufficient recoverable savings in order to invest in community care. On the other hand another view was that the size task of integrated projects should not be underestimated and that projects should start small. There were similar contrasting views expressed about incentives and choice, an English view was that there was a need for comprehensive reform of payment structures to ensure that integration is the preferred option (and presumably to avoid potential perverse incentives). However the continental view was that commitment to integrated care has to be voluntary, to preserve both patient choice and doctor autonomy.

Physical location was thought to be important, with co-located services enabling personal interaction between the multidisciplinary team members. However, in line with the strong discourse of benefits of information and communication technology, the alternate view is that virtual integration can be preferable, particularly when it is combined with in-depth computer analysis of patient risk level and quality controls.

Finances and accountability were a common thread through the day. Bundled payments were described as ways of commissioning care for multiple service needs of people with long term conditions. One view centred the bundle on the hospital and cautioned that all partners should take equitable shares rather than the hospital dominating. However the Dutch experience indicated that bundled care was centred on community care and that when an acute episode of the illness occurred, the bundled payment was paused and separate hospital financing took over (this indicates horizontal integration, with no integration of hospital and primary care).
Case Management
Case management has been the focus of many UK pilots including the majority of the DH national evaluation. But what does good case management look like? A recent KingsFund report states that it requires one person has accountability (although another speaker described team shared accountability). The case manager has the following diverse roles
  • care provider
  • listener
  • feedback to teams
  • care coordinator
Thus case managing is acknowledged to be a very specialist role – requiring appropriate recruitment, training etc. The person specification should not just be about clinical excellence; emotional intelligence (EQ) probably more important.
Case management programme design:
  • Targeting and eligibility to programme (getting thresholds right)
  • Manageable caseload (dependent on above)
  • Single point of access and single assessment (importance of assessment sometimes overlooked)
  • Continuity of care
  • Share data effectively (ICT)
A London based integrated health and social care programme included routine health assessment for half of population of older people in community every year. From this assessment, people who are at risk of deteriorating can be targeted for intervention. Case management can then prevent exacerbation of long-term conditions. However this raises another contrasting view, as a previous speaker had indicated that case management interventions should be time-limited, whereas a preventative intervention has to be ongoing, almost by definition. Of course there may be differences in definition and practice to explain this contrast.

Case management has a risk of becoming a bureaucratic process, as it may drift towards focusing on coordinating health professionals, rather than its patient centred origins. However at its best it empowers patients with shared decision making. It is equally important to involve the informal caregivers (partners and relatives) at this stage. Furthermore this can go beyond individual or even population perspective of the programme; patients who have been through the process could be professionally engaged to give support to current patients, as well as facilitate improvements to the programme, not just expert patients, but professional patients. There is potential here to link with the ‘health and wealth’ agenda, although some concerns may be raised of developing a disease-dependency culture.
Regional examples
The programme in Northumbria developed a Community Business Unit which was relatively independent from the partnership Foundation Trust. They found Transforming Community Services to be a natural progression of their work (as opposed to several other pilots within the DH programme which felt that TCS disrupted their programme). While some speakers thought that quick wins were important within public sector delivery, the experience from Northumbria was that it should be expected to take 5 years for programmes to bed-in.

Another example given was the Quebec PRISMA programme. This ‘single point of access’ system was successful in the city, but has encountered difficulty in rolling out across the province. The speaker indicated that this may be due to a difficulty in maintaining strong leadership, following an impassioned leader setting up the programme. Sustainability of innovation is a key aspect of implementation of research and policy and forthcoming seminars by Prof Graham Martin, in Leicester (video will be available online) and Nottingham (also available online) will present research in this area.

In my opinion there is also a geographic factor at work in the Quebec example; where programmes developed in urban areas may not ‘plug-and-play’ in rural areas. Similarly the Northumbria experience may be difficult to replicate in conurbations.

Findings from the Netherlands and Germany were that it was important to have a Network Manager who had a strategic oversight and some degree of control over the care providers (GPs and others) and the service providers (lab tests, medicines, ICT). It is not clear whether this is the model which will develop in England, but if so, CCG’s may step into this role.
Tweet@nchadborn:
Helmut Hildebrandt>need network manager org for strategic input #integratedcare apply theories from many disciplines incl org psychology
Tweet@nchadborn:
Hildebrandt> good data on improvements for hospitalisation and survival #integratedcare with comparator group in Germany
In Germany there were two partners to the integrated programme; a multidisciplinary physician network and a management company, this may in some ways reflect the social health insurance financing model. A key question posed by one of the Dutch presenters was – what would it look like ifhealthcare was delivered like airlines:

Two speakers from US discussed accountability and finances. One proposed that it was essential that financial incentives are aligned with capabilities to respond, that is you shouldn’t expect a financial package to do the whole job. The other emphasised the need for a triangle of accountability, capabilities and incentives.
The final session was on commissioning within the new structures of NHS England.
Tweet@TheKingsFund
MMc: inputs for integrated care for LTCs- pts in charge, proactive & accessible prim care & coordinated health & social care #integratedcare
Dr Martin McShane (NHS CB): NHSCB will have to work in partnerhsip and enable CCGs to commission effectively for LTCs #integratedcare
Tweet@nchadborn
@docmdmartin >admission to hospital of someone with long term conditions should be like tripwire for community health
@docmdmartin >admission to hospital of someone with long term conditions should be like tripwire for community health

Two representatives from Monitor assuaged concerns that anti-competition rules would constrain integration. Of course Monitor prioritises quality of patient care over encouraging competition. Based on the assumption that integrated care will improve patient experience and outcome, Monitor have stated that they would not investigate integrated care programmes for claims of anti-competitive behaviour.  However given the doubts raised earlier in the day that integrated care doesn’t necessarily improve patient outcomes or experience, organisations may still cautiously await further reassurance (and guidance documents) from Monitor.
Tweet@docmdmartin
Monitor expects individual cases of integrated care to be dealt with through self assessment using rules guidance &advice #integratedcare

My ‘typical academic’ take on the day was that it raised more questions than answers. Furthermore several speakers emphasised the need for continual evaluation to support ongoing development and improvement and the need to communicate these findings nationally and internationally, and of course academics are best placed for these tasks!
More soundbites:
“...requires huge amount of work and communication...”
“...prevention, effectiveness and efficiency...”  and “salutogenesis”
“...the most important person in the integrated team is the patient...”


Thursday, 23 February 2012

#IamSpartacus

Wow! If you mess with John Ashton OBE, you bring out the masses of ignored and gagged NHS staff, patients, carers - even public health professionals....(who are they the public ask...even politicians will be asking now...)

What happened to the Director of Public Health being independent and an important voice of accountability to protect the populations health interests?!

Drop the Bill - Drop the Coalition! (or am I being 'political' now?)

Friday, 27 January 2012

Response to The One Show article about lead in petrol

I must admit I don't often watch The One Show. But on Wednesday night (25th Jan 2012) they had a good article on how one professor fought against the establishment to get lead banned from petrol. It prompted me to write this response to the show:

It was great to watch your news item on the hazard of lead in petrol and your portrayal of the story of the lone professor fighting the automotive industry for the health of the public. I have been researching people’s understanding of the health risks of lead[1]. I think your audience may be interested to know that up to 40% of households across the UK may be exposed to lead within drinking water in their own homes, and recent research shows that this may affect development of intelligence in children[2].
Since the 1970’s it has been illegal to install lead plumbing, but many older houses still retain a lead supply pipe (even if the house has been replumbed). This pipe is owned by the property owner (running from the street, under the house, to the main stopcock, often under the kitchen sink). There is no lead in the mains water supply, but lead from the supply pipe can accumulate in the water, especially after water has been sitting in the pipe for several hours (i.e. the highest risk of exposure is first thing in the morning). Water companies treat water so that uptake of lead is minimised; which is partly why it is a forgotten problem, however this does not mean the problem has gone away.
If babies or children are exposed to lead, it can harm their intelligence and attention levels later in life. The effect of lead can build up over years, and the damage is permanent. Recent scientific research shows that there is no safe level of lead. The Government is following international and European advice in tightening up lead levels in 2013 (the standard will be lowered to 10micro g per litre). However, currently some houses exceed this standard (see water companies annual reports for compliance data).
Lead in water is a particular hazard to pregnant women and families with children under five years. Families who may have lead plumbing should particularly consider this when making up formula milk or other drinks for children. Although the best advice is to replace the lead pipe, there is a simple and immediate way to protect your family. Flushing the cold tap first thing in the morning will greatly reduce the risk. For many houses, filling a washing up bowl is enough (this can be used on the garden etc!)
It would take huge investment for all lead supply pipes in the country to be replaced, but I note that Ireland have recently made this decision[3]. When will UK take this brave decision to ensure that lead does not stop our children reaching their full potential?
Furthermore, as a follow-up to your story on lead in petrol, I would like to raise the continued lead pollution being emitted from the production of the lead additive in Cheshire/Merseyside. Innospec (formerly Octel – barrels of which are shown in your article) are the only plant in the world still producing this unnecessary, noxious chemical. While they claim on their website to be socially responsible[4]:
we recognise that the economies of some countries continue to depend on this product.”
However the company has been fined £8.5m for their involvement in bribing Indonesian Government officials to secure sales of this product. Not only has this scandalous practice poisoned Indonesian children but the lead air pollution from the plant near Ellesmere Port has been a hazard to children in nearby communities. Most recent data indicates that the Innospec plant near Ellesmere Port was the fourth biggest emitter of lead in the UK[5] (3.6tonnes in 2009). Perhaps your investigative journalists could confirm with Defra whether this plant continues to unnecessarily pollute the air at this level?


[1] Chadborn NH, Osborn K, and Lyons, M. Study to evaluate the effectiveness of interventions intended to reduce exposure to lead from drinking water within the vulnerable group
[2] Chartered Institute of Water and Environmental Management, Lead in Drinking Water
[3]O’Brien, Irish Times, 6th Jan 2012. 5,500m of lead piping to be replaced over health fears http://www.irishtimes.com/newspaper/frontpage/2012/0106/1224309892198.html
[5] National Atmospheric Emissions Inventory

Friday, 8 July 2011

Transition Network Annual Conference

I'm at the annual transition movement (UK) conference this weekend at Hope University, Liverpool. I'm going to try to keep a blog over the weekend - see my first blog:

Friday afternoon - Transition northwest meet-up
I arrived in the rain at Hope University for the northwest meet-up.  A bit late, everyone’s in a circle introducing themselves (approx 25 people). Michelle, the only person who would volunteer to organise such an event(!) suggested we have a few small group discussions (world cafe style). We started off talking about what was going well in our different groups. Lots of inspiring stories, including Lancaster who are setting up a community interest company to manage finance and employment, and Bolton who have just had a meeting, co-organised with the local college where 22 local organisations joined in. They made cards with words such as energy, food... and asked each group to take cards which were appropriate to their activities – then used these as conversation starters in small groups – a great way of engaging diverse groups and starting conversations. Another great example from Bolton was a kitchen in a high street shop. They had received lottery funding, and were located between veg shops – it regularly attracts a multi-cultural group – Somali, w. Indian, Pakistani.
We then moved into new groups to meet new people and discussed problems/challenges and other issues. Some groups had experienced difficulty communication with councils – eg one of us felt that their council were coming to realise that some of their economic plans aren’t going to work out. The economy isn’t going to recover the way it was. Also councillors had strong business interests; prioritising roads, supermarkets, football...
Other groups had positive reports about the council. Lancaster has several Green Party councillors and these are supportive of transition projects. At my local Transition Village Eastham and Bromborough two of our local councillors are regular attenders at meetings. Talking about meetings – this was another problem. Too many people are put off at the prospect of 2hr meetings, particularly when you consider the ratio of meeting time to activity ‘doing things’ time (sometimes more than 1:1).  It was suggested that activities could include talk, for example at a community orchard, talking could be done whilst working on the trees.
I was asking others how to really get our community projects out into ‘community’. We have received funding for a small healthy food growing project (from council and housing association). So we’re keen on getting going and getting people involved – and due to the funding we need to get this done and evaluated! This need to get things done and have visible outcomes came up a few times too. Several people suggested that slow and gradual was better than fast and burning-out. That maybe if nothing seems to be happening, it may still be smouldering under the surface. However this doesn’t usually fit with funding routes... but maybe we should also be challenging the status quo of funding structures...?
Final discussions were about links with other groups – virtual networks or real networks... There was no consensus on twitter, facebook, ning or googlegroups, so we ended up with the usual email list on a piece of paper... Although we did all say we’d try to get onto the northwesttransition.ning.com site.
We all agreed that we would like to continue the conversations, with future visits to exciting projects, and networks. We’d like to continue discussions around advice and guidance, and highlight stuff that’s working. There was a concern about burn-out and advice to be confident about asking for help.
Thanks to Michelle for organising and Dinah for tea and coffee, then we quickly dispersed to go and register for the conference!

Thursday, 7 April 2011

Working together for a stronger NHS

Modernisation of Health and Care (Dept of Health). This is not consultation part 2 - the reorganisation has already started with redundancies ('frontline' as well as 'managers') and 'clustering' of PCT's. This is PR, but merely for the record, a few things from the flash new 'leaflet':
'No change is not an option' (not because the country is in debt, but because of pensioners etc). Why did Cameron say no more top-down reorganisations then - what's changed?

I haven't read the whole thing, but I've searched for a few keywords, which I think are important qualities of a health service. I haven't managed to find the following words: quality, sustainable, waiting, accountable, value, reliable, resilient, transparency, equality (or inequality).
I did manage to find: personal (as in budgets, not care), morale (bureaucracy bad for..., not reorganisation bad for...)

Thursday, 24 March 2011

Equality, Health and Climate Change.


Great interview with Naomi Klein by Rob Hopkins at her recent visit to Transition Town Totnes.
Talking about several of the issues discussed at a recent Crisis Network conference on violence and climate change. Within our discussion group I asked whether it was useful to link all these ‘social objectives’ like equality, justice, and health to climate change. Is this strategy ‘greater than the sum of the parts’ or bring each down to the ‘lowest common denominator’ i.e. if our critics find a angle to argue against for the climate change debate, does that bring the social justice down as well? Will the critics presume that we are using climate change for our left-wing causes, thus providing another reason for them to be distracted from the issue?

"Maybe it did work, but like I said, the whole discourse on the right is about how climate change is a socialist plot to bring in world government and redistribution of wealth!  That’s the discussion that’s going on.  We’re not in any way responding to it and laying out a world view and saying, “yeah, we do believe in internationalism and here’s why.  We do believe in redistribution of wealth and here’s why we do think it will benefit your community and the vast majority of people on this planet and here’s why we don’t have to be afraid of it.”  Naomi Klein by Rob Hopkins

I guess I'm trying to look at this from a local perspective. If these arguments can work globally why can't they work nationally or locally? This is my argument for linking health inequality with climate change in Liverpool and Wirral. We have great social inequalities just within Merseyside. So we need to lay out a new world view - one that is Equal, Green and Well (Sarah Dewar, 2020 Decade of Health and Wellbeing). Can this start from communities fighting to maintain services and infrastructure and work upwards (as opposed to waiting indefinitely for that trickle to come down?) Completely different to Totnes but with a similar history of radicalism (see City of Radicals, hosted by Liverpool City Council in a completely ironic way...), could Liverpool be the place to develop this new world vision? As the annual Transition Network conference is heading this way in summer (8-11 July)- it could just happen!